New ALS drug
(`Motor Neuron Disease` or `MND` also known as `Lou Gehrig's disease`)
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A previously unknown problem protein has been discovered
A specifically designed new ALS drug, RCH4, successfully suppresses it
 ​RCH4 is available free of charge on compassionate basis depending on availability and location


Independent information, efficacy and statistical data for RCH4 from PALS own monthly monitoring reports by end of 2017
Individual familial    charts and life extension can be seen HERE 
It should be noted that although the ALSFRS-R score is the gold standard for decline measurement, it does not include factors such as get-up-and-go, strength etc.
It should also be remembered that the ALSFRS-R score may not reflect loss of motor neurons.
However, it is logical and true to observe that, for example, if the ALSFRS-R score does not change, then end of life would be due to something else - or extreme old age.
The monthly monitoring reports also track the drugs and all dietry supplements taken by PALS who are being treated with RCH4. We do not recommend taking supplements.
Current up to date reports on PLM can be seen HERE
Note: in March 2018 `Patients Like Me` (PLM) deleted more than half of all RCH4 evaluations and closed more than half of the accounts of members who take RCH4.
This was an ill advised and unfair response to totally untrue and malicious reports from certain other PLM members alledging that RCH4 is a "SCAM"
Refer to the possible background HERE  and HERE
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A direct table of information comparing the cost, side effects and efficacy, of the three most effective drugs for ALS / MND, i.e., Riluzole, Edaravone and RCH4, can be seen HERE

























(Sources: RC Database >10,000 datum points  Radicava: Mitsubishi Phase ll trial report  Riluzole: Public domain)

Some PALS are being provided with, or sold, a substance which may be counterfeit Radicava (also known as Radicut) and are being supplied by "reputable" on-line entities. Whereas Edaravone is a component of Radicava in modified form, it is not Radicava.
Some PALS who have taken counterfeit Radicava in the past, subsequently develop a reaction (short term itching) to RCH4.
Refer to the `Molecule` link below.
Counterfeit Molecule
Patients response to any drug can vary widely in ALS.